Sunday, October 25, 2015

Cousins!




Cyrus had a visit from his cousin, Tangerine! She kept telling us that "Baby Cyrus is so cute!" while she stroked his head soothingly, and anytime he started crying she was quick to reassure us that "he's okay mommy." He even seemed to look straight at her a few times! 
His seizure count has stabilized around 2-3 seizures per day. And daddy proved today that he can still see after shining bright neon pink flashing lights in his face... he was very startled at first, and then pretty interested. smile emoticon
And now he's passed out with the second full blown cold in his life.








Saturday, October 17, 2015

Learning to Cry



Cyrus's seizure count is way down! Over the last three days he's only had one per day! And on two of those days we're weren't even totally sure because they were so weak and subtle. 
Which gives me so much time to worry about other things - like the fact that he seems to have learned to cry. And since he usually never cries, when he does it's just so sad... 
The infant specialist that works with him every week suspects that he is cortically visually impaired, which means that his eyes are perfectly fine, but that his brain may not process the information correctly. She thinks that his vision goes in and out a bit - or that he sees in a series of still shots - the motion in-between may be hard for him to catch. I guess it's something new for me to research!

Sunday, October 4, 2015

Smiles!











Cyrus has managed to stay home all this last week! His medication is working well enough to prevent any major status seizures, if not all of the little seizures and he recovers from them quickly to his happy smiling and laughing self! Mostly, we're just experimenting with amounts and types of meds.
And only after a week and a half of trying I finally got a picture of that smiling face!