He had his follow up EEG and neurologist appointment today after being seizure free for the last six days. All the metabolic tests we did last week came back negative and we're waiting to hear about the genetic tests still - apparently those take longer. BUT the latest EEG came back without hypsarrhythmia (I didn't get to see the picture this time as I was holding Cyrus' hand through the whole thing) confirming that he has not been having seizures this last week. His brain waves are almost normal (there was one slight abnormality when they flashed strobe lights at him - he was not a fan), but much improved.
We are being weaned off of his medication slowly and then we're going for a follow up EEG again after the medication is reduced to confirm that he is continuing to go seizure free.
Then we're being referred to Early Intervention (Special Ed services before school) for assessment of his developmental progress.
At home his mood and engagement are much improved - almost back to normal. And I'm sure he'll be his enthusiastic chill self once we're off these pesky steroids!!
Thank you all for your love and support as we figure our way through this.
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