Sunday, December 13, 2015

Off the Schedule





Cyrus is currently going down on one of his anti seizure medicines and has managed to maintain his low seizure count with only 2/3 meds at full dose. Our hope is to completely eliminate it by the end of this month. This has been helping him to be more alert when he is awake and is helping to increase his appetite!! So he can hopefully gain more weight! 
We have received a tumble form chair on loan that will hopefully help with his posture and ability to sit upright. We get to keep it until he grows out of it! 
I made the mistake of letting Cyrus get off the schedule during Thanksgiving break and he seems to be responding to our attempts to get him back on the schedule by becoming totally nocturnal! Which is driving us crazy! But in general things seem to be going well. Excited for getting to spend another few weeks together over winter break!

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