Our longest stretch was this last winter. From November 5th to January 11th there was not a single smile. During that time, I began to doubt I would ever see a smile again! There was this one picture, taken in early November that I loved! But I also hated it as evidence of something that he had lost. And that smile in January had to keep us tied over until February 20th.
But a new medicine (clobazam - also known as Onfi in the US) brought them back. And smiling and laughing are a much more regular occurrence now. But usually they involve wild acrobatics of being swung around, thrown in the air, or dropped onto the bouncy bed.
Cyrus has had a string of some not so happy weeks. He's been a little hoarse, very sleepy, and yesterday he threw up and had a spike in seizures and then stayed up until three am grinding his teeth together.
I can also tell you that until today, the last time he had smiled was May 7th.
Today, we have completely broken that trend! He has been so happy today! His voice is back and he has been smiling and laughing all day. He has laughed socially! And laughed spontaneously on his own while in his own world rolling around on the floor! We converged upon him immediately to share and multiply his joy. It was a pretty cool moment. And an even better day.
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